Every hour of every day someone is diadnosed with Parkinson's
The staff at Parkinson's NSW care for my whole wellbeing, not just my Parkinson's - Carl
A phone call can change a life
No matter where they live, we can connect people living with Parkinson’s to a world of assistance they may not even know exists.
Medical
Our Specialist Nurses are a
crucial service for people living
with Parkinson’s in regional
and rural areas, who otherwise
face difficult travel and long
waiting lists to get help with
urgent problems.
NDIS Support
Our NDIS Advocate helps
people like Carl navigate the
NDIS system so they can get
services and supports they
need to manage their
condition.
Peer Support
We help patients get in touch
with a local Support Group,
which can help them build
friendships and share
experiences with people who
understand what they’re
going through.
Physical
Our Specialist Nurses
can help patients understand
what therapies they need, and
put them in contact with the right
health professionals in their area,
from speech pathologists to
physiotherapists and occuptional therapists.
Emotional
Living with Parkinson’s,
or caring for someone who is,
brings up unexpected
emotional challenges. Our
Counsellors can listen and
provide support.
Educational
From education seminars
for newly-diagnosed patients
to information for carers,
family members, and health
workers, we help shine a light
on living with Parkinson’s
Carl's Story
At 39, Carl had big plans for his future. He had a job he enjoyed and four children to raise. But a diagnosis of Parkinson’s changed his life forever.
It all started when colleagues noticed Carl had slowed down a lot at work. His walk had changed. Carl hadn’t recognised any problems himself, apart from a sore left arm so he shrugged it off for a while
until his wife convinced him to see a GP, who immediately booked him in to see a neurologist.
“It never once crossed my mind he would say it was Parkinson’s. But he picked it up the moment I walked in the door.” – Carl
The news shattered his world, his family and his dreams.
